A number of parents and patients from London have formed a drug buying club, following what they've described as a stalemate between a manufacturer and the NHS.
Inspired by the Hollywood film, the Dallas Buyers Club, where people joined forces to get treatment for HIV, the new club is hoping to get hold of medication which helps protect lung function for people with cystic fibrosis.
The product, called Orkambi is not widely available on the health service after it was deemed too expensive.
A Department of Health and Social Care spokesperson said:
It is absolutely right that patients should have access to cost-effective, innovative medicines on the NHS at a price we can afford.
Our approach remains to urge Vertex to accept NHS England's generous offer.